I attended the August 2018 U. S. Breastfeeding Committee (USBC) meeting of its organizational members, and the subsequent National Breastfeeding Coalitions Convening [conference] (NBCC). The theme was “Advancing Public Health Through an Equity-Centered Breastfeeding Movement.” I’m for that! Excellent sessions, speakers, and award presentations, sharing advances (and challenges) in clinical and advocacy work in breast/chestfeeding and human milk use.
Dr. Jann Murray-Garcia gave two spectacular sessions on race/racism, bias, and the concept of “cultural humility,” a phrase coined by her and a colleague. Inherent biases — which every human being has — impact our interpersonal interactions in ways we don’t even realize or recognize. It is about automatic thinking (“Quick! What is 1 + 1?” We know the answer without even thinking about it). Dr. Murray-Garcia describes this phenomenon as a “script” (that “ensures the same and expected outcome”). But with awareness of this underlying driver of our behaviors, humans can also shift or re-write the script. Thoughtful thinking matters (“Quick! What is 11 x 17?” That requires some slowing down; a careful mathematical calculation). If you KNOW that your mind has been trained since birth (by family; by society and culture, by history) to have automatic assumptions and thoughts, you can start to disrupt and re-write those scripts by intentional, thoughtful interactions.
Juxtapose this scenario: A professional colleague of color described (yet again) a situation where whites were challenging the narrative of black persons who were describing their own black experience (about BFg and parenting). The commentary goes something like this: “You said X; couldn’t it really have been Y?” instead of “You said X. I believe X.”
It swings the spotlight from the speaker of color talking about their experience, around to some one who was not even there, and who thinks they have a better interpretation of what went on. Well, hmmm. This stuff has always struck me as rude and self-centered. And it is a function of privilege that whites do (a lot). And so I try to “check my privilege” and shut my mouth/open my ears as much as I can. I fail often, and I will say I have heightened awareness to just how frequently my clinical and professional discourses provide me opportunities to check privilege. This is a systemic and structural issue, folks.
And then I serendipitously stumbled upon the phrase to describe this: “epistemic testimonial injustice.”
I am something of a geek for anything Daniel Goldberg writes, especially on Twitter. He shared there a link to a heady legal-bioethics-disability rights conference where he presented, as a panelist. You’ll want to scroll down to the fourth video (in the link here) to view; his 15-minute section comes at about 41:00. While this scholarly context is about disability/public health, Goldberg talks about “epistemic injustice” which comes from the 2007 writings of Miranda Frick (“the epistemic side of oppression, focusing on racial and sexual oppression”) (here is a good review of that work).
“Epistemic injustice” recognizes it is possible to “wrong another in their capacity as a knower.” It is not about injustices connected to the traditional bioethical concepts of fair distribution of goods and services. It is about the “independent wrongness” of “silencing and invalidating and de-legitimizing when people share their own experiences.”
Testimonial injustice is when someone shares their own lived experience, and it is not believed; it is challenged, questioned, denied, de-legitimized. (Hermeneutical injustice is about “a shared lack of resources to interpret the experience of a particular group or a member of the group.”)
Whoa. I’ve got a whole new way to call folks in/out when I witness some spotlight-swinging.
No guilt involved! We don’t know what we don’t know, but when we know better — we do better (with a hat tip to Maya Angelou). As Dr. Jann Murray-Garcia said: There are triggers out there about which we may be wholly unaware. When you mess up, be humble. Apologize, don’t share your “cultural resume,” forgive yourself, and check that script with your “community of dialogue.”